Patient perspective in outcome measures developed by OMERACT
نویسندگان
چکیده
منابع مشابه
The OMERACT filter for Outcome Measures in Rheumatology.
198 It is of note that the OMERACT process has been emulated by 2 other independent groups: one in the field of chronic juvenile arthritis5, and one in ankylosing spondylitis6. The former first developed a core set followed by response criteria, closely mimicking the process of the American College of Rheumatology and OMERACT for adult rheumatoid arthritis. The latter initially formulated a cor...
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The Patient Perspective Workshop at OMERACT 7 addressed the question of assessing the outcomes of intervention in rheumatoid arthritis (RA) from the perspective of those who experience the disease. A particular emphasis at this workshop was placed on fatigue, but other areas included well-being, real-time assessment, patient priorities, and needs in early and late disease. Through a series of o...
متن کاملSuccessful Stepwise Development of Patient Research Partnership: 14 Years’ Experience of Actions and Consequences in Outcome Measures in Rheumatology (OMERACT)
There is increasing interest in making patient participation an integral component of medical research. However, practical guidance on optimizing this engagement in healthcare is scarce. Since 2002, patient involvement has been one of the key features of the Outcome Measures in Rheumatology (OMERACT) international consensus effort. Based on a review of cumulative data from qualitative studies a...
متن کاملPatient Endorsement of the Outcome Measures in Rheumatology (OMERACT) Total Joint Replacement (TJR) clinical trial draft core domain set
BACKGROUND A patient- and surgeon-Delphi-derived Outcome Measures in Rheumatology (OMERACT) draft core domain set for total joint arthroplasty (TJR) trials was recently developed. Our objective was to obtain further patient stakeholder endorsement of draft core domain set for TJR clinical trials. METHODS We surveyed two patient groups: (1) OMERACT patient partners; and (2) patients who had un...
متن کاملPatient involvement in the development of patient-reported outcome measures: The developers’ perspective
BACKGROUND Patient-reported outcome measures (PROMs) are increasingly used in health care. To capture the patient's perspective, patient involvement in PROM development is needed. As earlier research showed varying degrees of patient involvement in PROM development, this study aimed to investigate why PROM developers do or do not involve patients, how patients can be successfully involved and w...
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ژورنال
عنوان ژورنال: Indian Journal of Rheumatology
سال: 2013
ISSN: 0973-3698
DOI: 10.1016/j.injr.2013.11.004